Other Info

Arthritis Care

Arthritis Care is the only national voluntary organisation working with all people with arthritis. It operates over 600 local branches and groups and provides a wide range of services including a quarterly magazine, information counselling, publications on diet, exercise, pain management and other topics, self-management courses and holidays for all age groups, including families.

Young Arthritis Care is a self-help support group run for all young people with arthritis – anyone up to the age of 45. It has a National Committee made up of young people with arthritis. It has a nationwide network of contacts consisting of young people with arthritis or parents of children with arthritis who help, support and advise others in similar situations to their own. There are local groups around the country which allow members to get together, share information and give each other support. Various publications are available on request, including a regular magazine and a Ruff Guide for young people with arthritis.

Projects currently running are Personal Development Programmes for young people and Positive Future Workshops for teenagers. These weekend residential courses are aimed at sharing experiences with others and building confidence.

All Arthritis Care and Young Arthritis Cares work is aimed at promoting self-help and independence, and empowering young people with arthritis to live positive lives.

Scottish Network for Arthritis in Children

The aim of SNAC is to provide a national support network for children with arthritis and their families through the provision of factual, practical and emotional support. It aims to pull together the wider community of affected children in Scotland as well as raise public awareness of childhood arthritis.

 

iCAN

Like CCAA, iCAN is a parent-run network based in Ireland providing support, information and advocating for best care for those affected by Juvenile Arthritis. iCAN is 100% volunteer based and run by parents of children with JIA. They are working towards making things better for kids with Arthritis in Ireland!

Contact a Family

The Lady Hoare Trust merged with another charity, Contact a Family, in December 2004.  Their team of fieldworkers, all with specialist knowledge of arthritis, transferred to the new charity. 

The combined charity is now known as Contact a Family.  Contact a Family is a UK wide charity providing support, advice and information to any family with a disabled child, including any form of arthritis. 

There are over 700,000 disabled children and young people in the UK.  Contact a Family’s UK wide staff team can help them by:

  • putting families in touch with support groups or, where there isn’t a group, as is the case with many very rare disorders, linking families directly.  This can be on a one-to-one basis as well as electronically through our linking website www.makingcontact.org
  • putting families in touch with specialist national or local voluntary organisations which can help, for example on adaptations and equipment which may be vital for a young person with arthritis. 
  • giving medical information on any condition affecting children and young people. 
  • advising on families’ rights to benefits and tax credits through our specialist welfare rights project. 
  • sending any one of our range of factsheets on subjects such as living without a diagnosis, a genetic condition in the family, booklets for grandparents, fathers and siblings as well as practical information about education rights, community care and holidays. 
  • talking to families via an interpreter in over 100 languages if a language other than English is preferred.  Theye also give basic immigration advice. 

If families need information visit the Conatct a Family website www.cafamily.org.uk

Useful Numbers & Websites

Action for Sick Children
Web: www.actionforsickchildren.org.uk
Tel: 0800 074 4519

Arthur’s Place
Web: www.arthursplace.co.uk
Email: info@arthursplace.co.uk

Arthritis Care
Web: www.arthritiscare.org.uk
Tel: 0808 800 4050

Arthritis Research
Web: www.arthritisresearchuk.org
Tel: 0300 790 0400

Benefits Advice – Carers and Disability Benefits
Web: www.gov.uk/browse/benefits/disability

BSPAR Parent’s Group
Web: www.bspar.org.uk/parents
Tel: 020 7842 0900

Contact a Family

Web: www.cafamily.org.uk
Tel: 020 7608 8700

IPSEA – (Independent Parental Special Education Advise)
Web: www.ipsea.org.uk
Tel: 0800 018 4016

JIA @ NRAS
Web: www.jia.org.uk
Tel: 0845 458 3969

National Association of Special Educational Needs (NASEN)
Web: www.nasen.org.uk
Tel: 01827 311 500 option 4

Olivia’s Vision
Web: www.oliviasvision.org
Tel: 08450 758 114


Scotland

SNAC (Scottish Network for Arthritis in Children)
Web: www.snac.uk.com
Tel: 07504 609510

 

Northern Ireland

iCAN (Irish Children’s Arthritis Network)
Web: www.icanireland.ie
Tel: 086 828 9817