Avon Tyrrell Weekend

"You are a very special group of people."

Avon Tyrrell Weekend – “You are a very special group of people.”

Following our first of two family support weekends for 2015, we received an overwhelming number of comments and feedback from those that attended. We would like to take this opportunity to thank you all for your kind comments and we are so glad to hear that you all had such a great time!

We have put together a snippet of the comments for you…

Daniel Madge…

Thanks to everyone for a great weekend. Kids are suitably exhausted!”

Karen Deacon…

“Thank you all for making this weekend such a great time…we all really enjoyed it xx”

Craig Sutton…

I can’t agree more. What a fabulous charity with amazing volunteers. I also have to thank the other parents and kids for teaching us so much about JIA. Will miss you all xx”

Nicki Brown…

“Thank you too all the committee and volunteers at CCAA. This weekend is a life line to many of us and a unique experience for our children. It will be a lifelong memory for them! My two have gone to school tired and happy with their certificates to show their class. Fab to meet so many SuperMums and SuperDads , thanks you for sharing your experiences and all the fun x Good luck to everyone who has come home with a long action list!”

Trudi Else…

“Thanks everyone and CCAA, a great weekend. Kids had a great time as did we – came away with loads of tips. Reassuring to know we all go through the same emotions. Fab charity.”

Vicky Pombo…

“My kids say they want to go back next week!”

Lynda Martin…

“Alex loved it. He’s come away so happy and with so much more understanding of his JIA and he knows he’s not alone now. Thank you so much CCAA. Amazing people amazing charity. And yes a reunion is needed!”

The Hill Family…

“Dear CCAA, Thank you! Actually…that doesn’t really go far enough. I feel like my family have been in therapy!

“I have to admit, I arrived on Friday with some trepidation – it’s not really us, this support group thing- What will everyone be like? Will it be a bit depressing? Will people want to talk to us?

“The sun was shining, Avon Tyrell was such a beautiful setting and we were warmly welcomed in the car park by Brenda. It might just be alright.

“By the time we’d exchanged shoes (ice well and truly broken with Alan’s help) we had made new friends – I refer to James and I – the kids were doing likewise out on the terrace playing games with all the other children. And that set the scene for a wonderful, relaxing evening. Bar open, sun shining, kids playing, parents laughing and getting to know each other watching our children play together as though they had known each other a lifetime as the sun went down.

“Saturday brought immense fun for the children – our son at four and a half went off to the penguin club to embark on a day of mini-best adventuring and pond-dipping, our daughter Freya, 9, with a long history of JIA was sore from the previous evenings fun but keen to keep up with her group activities of archery and kayaking! Well supported by the lovely CCAA volunteer leaders, she had a wonderful day, while James and I attended talks by a rheumatologist and our own specialist nurse. The content was excellent and useful to those just beginning their JIA journey as it was to us some way down the road. The group became more keen to ask questions, felt relaxed enough to contribute and share their experiences.

“After lunch with our children, we attended konrad’s talk. The best for me personally, he engaged us all in the process of exploring and validating our feelings as parents of children with a chronic illness. At times a little emotive, I hope all would agree it was a supported, convivial environment in which to share fears, open up and discuss our experiences, frustrations, helplessness…

“Barbecue and family quiz ( and a slightly earlier night!) all round before another day of fun for the children and an informative presentation by a physio and occupational therapist, again excellent content prior to our final lunch together with our new found friends,  it was about this time I had an awful feeling of dread. We had to leave. I can only explain my feelings in this way;
“but we’re safe here”

“We had spent two days surrounded by people who truly understand. Who share our fears, anxieties and helplessness. These people live our lives, I don’t have to explain myself, they just know already.
This support group thing, it’s alright. I didn’t realise how much we needed it, until we had done it. I truly feel blessed to have shared that weekend with so many wonderful families, who’s lovely, polite and incredibly brave children inspire me so much. I am so grateful to them all – they made our CCAA weekend very special and we will remain friends with many.

“I am so grateful to the committee, especially Jazz and Amy who bravely shared their own experiences for our benefit and Amy’s lovely family who have undoubtedly carved us an easier path in supporting our daughter as she grows up with JIA.

“Thank you all so much, you are a very special group of people who I am privileged to have met and shared this experience with. I look forward to a long relationship with the CCAA and hope I can support the charity in many ways going forward.

“With grateful thanks from the Hill family.”

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