CCAA News

September Weekend Almost Full!

This year our weekend at Avon Tyrrell was full to capacity very quickly, and the applications are going the same way for the September weekend at the Hollowford Centre! The CCAA annual weekends are organised for the children and families that are dealing with the effects of Juvenile Idiopathic Arthritis (JIA) and they are open to any family of a child with JIA. For 25 years, we have been organising weekends of fun activities for...
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CCAA say goodbye to Michael Aldrich

Sadly, recently CCAA learnt of the death of Mr. Michael Aldrich. He was Chair of CCAA for many years, and guided the Executive Committee in its’ endeavours to help children suffering from Juvenile Arthritis. He was passionate about the work of the Charity and its’ efforts to offer support to the families affected by Juvenile Arthritis. Our condolences go out to his wife Pamela, his daughter Sue, his Son, grandchildren and all the family.

Thank you and Happy, healthy new year!

Wishing you a happy and healthy 2017 We would like to thank all our loyal supporters, fundraisers and donations for 2016. Without you we couldn’t help the families that look to CCAA for help and guidance when they are learning to cope with the daily struggles of living with JIA. We wish you all a very happy and healthy 2017 and hope to see you on one of our weekends this year! They are filling...
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Spreading the word at BSPAR

Recently our Committee Chair, Brenda, and Committee Member, Sue, attended the BSPAR Conference in Manchester, helping to spread the word to the health professionals about the work we do. BSPAR merged with the British Society for Rheumatology (BSR) in 2016 and now works as a parent committee and aims to: Encourage and support clinical care, research education and training in paediatric rheumatology in the U.K. Work with the Royal College of Paediatrics and Child Health...
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World Arthritis Day 2016

Throughout the week of 10 – 14 October we will promoting the benefits of getting active and exercising when treating Juvenile Idiopathic Arthritis (JIA), in aid of World Arthritis Day. We are asking you to send in your pictures of your little ones doing what they love – being outdoors, exercising, a sport…whatever it is, as long is it’s them being active then please send in to: info@ccaa.org.uk or send as a private message to...
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Trav’s Marathon Mania for CCAA

Sunday 25th September was the start of a gruelling few days for Trav Wood as he sets off his week long challenge for CCAA at the Cheltenham half marathon. Trav will complete two half marathons a week apart BUT…will run from one to the other in between, which is the equivalent to 6 marathons in 6 days to make it to his final half marathon in Lincoln. Totalling an impressive total of over 182 miles...
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Channel 4 call for Apprenticeships

Are you looking for a new challenge? Channel 4 are inviting Apprenticeship applications to work in one of their departments for 12 months. You will learn how everything works, what everyone does, and how it all fits into the bigger picture of Channel 4. In 2016 Channel 4 will again broadcast the Paralympic Games to British viewers so this year they particularly welcome applications for their Apprenticeship Programme from people with disabilities as they have...
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JIA NRAS Family Day

This year the NRAS are holding their JIA Family Fun day in Ilkley, West Yorkshire on Saturday July 23rd  (11am to 4pm). To register visit www.jia.org.uk   

2017 Weekend Dates Announced

We have just held our 24th weekend at Avon Tyrrell, in the New Forest and it was a great success! The weather was kind enough and judging by the comments from parents and the kids, everyone sure had a great time! The 2017 dates are already booked in and we are taking bookings from now, so get in their early to avoid disappointment and book your weekend of family fun for July 2017 today! The...
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The World’s First Disability Push/Run Race

It’s the world’s first disability led Push/Run for everyone! Parallel London – 4 Sept 2016, Queen Elizabeth Olympic Park Are you looking for your next fundraising challenge? This could be it! In this charity event you can run, walk, wheel, push or be pushed in the very first fully inclusive and accessible fun push/run at the iconic Olympic Park. The event is open to all ages and abilities – disabled and non-disabled – with no equipment restrictions...
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Founder of Worcester-based national charity steps down after more than 25 years of voluntary work

Caroline Cox from Worcester has, for a number of years, provided a 24/7 telephone support services for families all over the country whose children have developed arthritis. She has given presentations at international conferences in the presence of eminent medical professionals specialising in the field of Juvenile Idiopathic Arthritis (JIA); helped to run a national charity and supported thousands of families. There probably isn’t much she hasn’t done in connection with her role as a founder...
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CCAA Welcomes New Patron

After 28 years, our wonderful General Secretary of CCAA, Caroline Cox, is retiring from the charity. On Sunday 17th April, Caroline was surrounded by her family, friends and all of the CCAA committee, at the Worcestershire Golf Club to give her the send off that she so deserves. We are extremely proud and happy to announce that Caroline has also become Patron of CCAA, so she will always be involved in the charity that is so...
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Lambrook School Raise £25,000 for CCAA

Lambrook School, set in the heart of the Berkshire countryside, raised an impressive £25,000 for Childrens Chronic Arthritis Association. The charity are absolutely delighted to have received this donation and as always thank every single person that donated to achieve this amazing amount of money. The money will go towards the two family support weekends that we hold each year in the UK as well as providing support for the families and children that suffer each...
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Percy’s home– thank you everyone!

World Arthritis Day 2015 has seen likeminded charities across the country do their bit to raise awareness of juvenile arthritis. And as usual the effort of the CCAA supporters has been second to none! Over the past week Percy has travelled to 156 different locations across the world, from Taiwan to near enough every city and county in the UK! Bermuda, Malawi, Poland, Vermont, Minnesota, Indianapolis, Melborne, New York, Sydney, Zurich, New Zealand, Canada, Singapore,...
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Percy On Tour – World Arthritis Day 2015

Some of you may already be familiar with Percy but for those of you who aren’t…meet Percy the CCAA mascot. For 2015 World Arthritis Day we want to get Percy as far around the world as we can. But we need your help! All you need to do is share the photo/post on our Facebook page with friends and family asking them to share. BUT don’t forget to mention your LOCATION in the comment box...
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Monique’s volunteering experience at CCAA

“I have had JIA for 16 years and attended a CCAA weekend at Avon Tyrell when I was quite a bit younger. This year I thought I would return to help out! The Hollowford weekend 2015 was my first time volunteering at a CCAA weekend, and it certainly didn’t disappoint. “In short I had an amazing time! It was just so great to see the children making friends with one another; being able to share...
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Inspired by her stepdaughter, Vicky runs through the pain of the Edinburgh Marathon in torrential rain

“After attending the CCAA weekend in Derbyshire last year I was inspired by the bravery and great attitudes shown by the children and all the volunteers who give a great deal of their personal time to help run this fantastic charity. “Having started running again quite recently before attending the weekend I thought that it would be a good idea to try and give something back to those who have been so supportive especially, after...
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NHS revokes funding for Uveitis – please sign the petition

Some children with JIA can also develop inflammation within the eye, a condition known as Uveitis.Children with Uveitis can often suffer irreversible damage to the eye or worse still, blindness, from the disease. It has been announced that funding has been revoked for vital drugs for Uveitis; the third most common cause of preventable blindness in the UK. The NHS has revoked funding despite clear clinical evidence and medical support. As a result of this...
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Avon Tyrrell Weekend – “You are a very special group of people.”

Following our first of two family support weekends for 2015, we received an overwhelming number of comments and feedback from those that attended. We would like to take this opportunity to thank you all for your kind comments and we are so glad to hear that you all had such a great time! We have put together a snippet of the comments for you… Daniel Madge… “Thanks to everyone for a great weekend. Kids are suitably exhausted!” Karen Deacon… “Thank you all...
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CCAA become chosen charity for Cricket League

The North Staffs & District Cricket League Ken Lightfoot Phoenix 15 Competition are pleased to announce that they have adopted the Children’s Chronic Arthritis Association as it’s chosen charity for the 2015 season. Since 2006 the League has adopted a charity each season and so far the total raised has been in excess of £11,000. The main fundraiser is our Finals Day, which this year is scheduled for Sunday 16th August, when all the Zonal winners come together at...
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SHARE Project

The CCAA are taking part in the parent/patient part of the SHARE (Single Hub and Access point for Paediatric Rheumatology in Europe’s) survey. If you would like to know more and take part click here.