If you have booked onto one of Family Support Weekends or you are thinking about coming along, take a good look through our Frequently Asked Questions (FAQs). Any questions you may have about the weekend may be covered below. We have compiled this list from the questions we get asked regularly and they are always updated. So if you have a question that isn’t listed here, then please get in touch and we will be happy to answer it for you. It will also give us an opportunity to add it to this page and help other families that are attending be more informed.
The venue for the weekend is the Hollowford Centre, which is set on the outskirts of the picturesque village of Castleton, Derbyshire, in the heart of the Peak District National Park.
The centre is owned by the Lindley Educational Trust.
Mapping / navigation software only indicates the centre of the postcode area. S33 8WB is indicated as being approximately 700m NorthEast of the centre.
Once in Castleton, Hollowford is sign posted from the 90 degree bend adjacent to the post office. Look out for the CCAA balloons and signage and there will be a yellow CCAA flag at the entrance to the centre.
Yes the Hollowford Centre has wifi throughout the main building.
You will be provided with the login details in your welcome pack.
In addition to the bedrooms, the centre has a number of communal areas including
a games area with table tennis, a pool table and a football table. There is a lounge area which will be used as our meeting point throughout the weekend and in the evening for entertainment and a bar/tuck shop.
Outside space is plentiful! There are small climbing walls for the children to use, a small park for them to use (whilst being supervised by a parent/adult at all times) and plenty of beautiful scenery to enjoy.
We ask that families start arriving anytime FROM 5pm onwards. Please do not arrive earlier, as due to Health & Safety reasons, you will not be given access to the building and we will be setting up before this time.
This is only a recommended arrival time as we appreciate that people have jobs and school pick ups to consider. It just enables most people to arrive before the evening when the bar will be open and families can get to know each other.
(if possible) that families try to arrive at the venue for 7pm as the evening is a great opportunity for the children to meet others in their assigned groups.
Upon your arrival, please make sure that you register, collect your name badges and welcome pack on arrival. There will be a CCAA table clearly visible at the entrance to the centre, with a CCAA team member there to welcome you.
For each weekend the schedule will vary depending on a number of variants including, how many groups we have, the age of the children and the health professionals that can get commitment from for the weekend. We have provided an example schedule below to give you an idea of what to expect at the weekend.
For the activities and parents session, yes parents and children will be separated. We do this for good reason, as we find that the children make friends quicker and their confidence builds doing the activities without parents being present.
Whilst the children are doing the activities, parents will be in sessions with Health Professionals that will present information to you about JIA Management, including subjects such as psychology, management of JIA, patient and professional relationships etc. The programme of sessions depends on what health professionals that we have attending.
We understand that parents and children may be nervous about being separated, however having run these weekends for almost 30 years we have found that this format is the most successful. It is of course only natural to be worried, but by Saturday lunch time we can guarantee that your children will have already started making some great friendships and will be buzzing from the activities they will have done in the morning!
If you have any concerns at all please do get in touch.
The children are placed into a group of 10 or less which is organised by their age. This is so that they make friends with children their own age and can (if they want to) talk about their own experiences and feel less alone in the JIA journey than they might do in every day life.
You will be told which group your child is in on arrival and your child will have an opportunity to meet the other children and CCAA group leaders on Friday evening.
Each children’s group will be allocated a Hollowford Centre, qualified instructor and a CCAA group leader, for the duration of the weekend. To give consistency and comfort to the children and help them build friendships the children in each group will also remain the same for the weekend.
Yes. As well as the activities they will all take part in a practical session which helps them to learn more their condition or their siblings condition. Its a session to encourage openness, positivity and confidence as well as help them to understand they are not alone in their journey.
Health Professionals form an essential part of our weekend. Without them we just wouldn’t be able to run the weekend for families like yourself.
They give their time voluntarily to the charity and to provide you with essential information to help you find out more about JIA.
It is important to remember that the Health Professionals who attend the weekend are there to educate and give general advice.
Although they will be around to talk to, we are sure you can appreciate they are unable to give specific treatment advice about your child’s JIA.
Details of the health professionals and the titles of their sessions will be circulated via your email address provided at time of booking, before you attend the weekend.
This is very much specific to the weekend that we organise. We always try to have a Consultant and Clinical Nurse Speciliast present at the weekend to help give advice on the management of JIA.
Each weekend differs. In the past we have had Occupational Therapists, Psychologists, Dietitians, Nutritionists, Pharmacist, Play Therapists and Optometrists attend the weekend.
Due to a strict timetable and so much to cover it is unlikely that we will have all these Health Professionals attend the weekend at one time.
Yes, each family will be allocated their own room with their own bathroom facilities. The rooms are a combination of single and bunk beds.
No, all bedrooms will be provided with bed linen. There is no need to bring your own.
Yes, please bring towels for the whole family and your own toiletries. There is no shower gel/soap provided in the bathrooms.
Please bring clothes for the whole family, that are suitable for outside activities.
These clothes are very likely to get dirty and possibly wet (so it is advisable not to bring your best clothes for the activities).
Long sleeve tops MUST be worn for the High Ropes and Archery. It helps if children bring spare clothes and a towel with them to the activity so that they can change straight after if needs be.
Don’t forget your waterproofs (ideally tops and bottoms). The Hollowford Centre does have spare waterproofs in case anyone forgets.
Please bring shoes for the whole family, that are suitable for outside activities.
These shoes are very likely to get dirty and possibly wet (so it is advisable not to bring your best shoes for the activities).
Shoes will almost certainly get wet and dirty during activities, so it is advisable to bring a
spare or old pair of trainers/wellies/walking shoes.
Please ensure that ALL footwear worn for the
activities are closed toe. E.g. no flip flops, sandals etc.
There is a drying room available for use, but we would strongly recommend you bring plenty of spare clothes!
Yes, all your meals are catered for from Friday evening to Sunday Lunch time. Each meal will include a main meal and dessert and water/juice.
The menu is varied and will include suitable options for any dietary requirement that was provided upon booking onto the weekend.
No unfortunately we are unable to provide baby food, so please cater for your young one by bringing enough food and snacks for the duration of the weekend.
There is a fridge available for use to store baby food in.
If you have any additional dietary requirements please state this on the booking form when booking your place.
If you would like to confirm that we have your dietary needs listed after your booking please contact us.
Yes! We have children from the ages of a few months to 17 years old that come to the weekend.
We have the Penguin Club which is run for the under 5’s that are attending the weekend.
The Penguin Club is located onsite at all times. Our committee member and School teacher Sue heads up the Penguin Club, so your little ones are in great hands.
We ensure that the chuld/adult ratio is adhered to ensure your child has excellet care and attention.
The Penguin Club team will play take the children on woodland walks, play with the club toys, paint, draw, model with play doh, sing, dance and play games with them.
They will have so much fun!
It’s no problem!
Before the weekend you will be sent a form which asks for all the details regarding, nap times, feeding times, allergies, routines, habits, what they like to play with etc.
If your child still naps in the day, please be sure to provide the Penguin Club with a buggy so they can take them for a walk.
During the weekend you are responsible for your child’s medication. Please DO NOT FORGET to bring them, as we will not have any medication on-site.
Yes, there is a communal fridge outside the dining room for everyone to use. Please make sure you clearly label any medication, food or drink carefully with your name.
There will be full First Aid cover and the Hollowford Centre will publicise their Emergency contact number.
Each of our CCAA group leaders will be equipped with a small essential first aid kit whilst they are doing activities.
The CCAA Family Support Weekend is free to attend.
However in order for us to continue running this weekend for families like yourself, we do ask for a small donation to the charity in return for attending.
We suggest £30 per person, up to a maximum of £120 per family. Due to personal financial circumstances you may want to donate more or less, this is entirely up to you.
It is important to remember that you we don’t want anyone to not be able to attend purely because they can’t afford to, so please don’t let the suggested donation put you off from booking your place.
If you have any questions regarding the donation please get in touch.
Your accommodation and meals are paid for, for the duration of the weekend.
However you may want to bring some cash with you for the tuck shop and bar which will be open Friday and Saturday evening.
We will also have CCAA promotional merchandise for sale at the weekend and we are only able to take cash for these items.
100% of the proceeds from anything we sell goes straight back to funding the weekend and helping to support families with JIA.
Your accommodation, food, drink and activities will be provided for the duration of the weekend. For the under 4’s the penguin club care is provided also.
Snacks and drinks for the children’s break time will also be provided as is tea and coffee for the parents breaks.
Any dietary requirements are taken into consideration for the children’s snacks.
We know that sometimes things don’t go to plan or something happens which may prevent you from attending the weekend. If this is the case, we ask you to please let us know, as soon as you become aware.
Every year our weekend is oversubscribed and we hold a reserve list of families who are prepared to attend at short notice; if for any reason you are not able to attend the weekend, please could you let the charity know ASAP.
The earlier we know the more possible it is to invite another family attend who can benefit from the experience.
Unfortunately sometimes we have families that despite booking don’t turn up. Please be aware that by not showing and not informing us you have taken another families place that could have benefited from the weekend.
Non attendance without prior notice, is a waste of charity funds! If you don’t turn up we are still liable for the cost and each weekend costs the charity approximately £14,000!