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Arthritis Care is the only national voluntary organisation working with all
people with arthritis. It operates over 600 local branches and groups and
provides a wide range of services including a quarterly magazine, information
counselling, publications on diet, exercise, pain management and other topics,
self-management courses and holidays for all age groups, including families.
Young Arthritis Care is a self-help support group run for all young people with
arthritis — anyone up to the age of 45. It has a National Committee made up of
young people with arthritis. It has a nationwide network of contacts consisting
of young people with arthritis or parents of children with arthritis who help,
support and advise others in similar situations to their own. There are local groups around the country which allow members to get
together, share information and give each other support. Various publications are available on request, including a regular
magazine and a Ruff Guide for young people with arthritis.
Projects currently running are Personal Development Programmes for young people and Positive Future Workshops for teenagers.
These weekend residential courses are aimed at sharing experiences with others and building confidence.
All Arthritis Care and Young Arthritis Cares work is aimed at promoting self-help and independence, and empowering young
people with arthritis to live positive lives.
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The CCAA is a registered charity and provides a Support Network for children with
arthritis and their families. We aim to give practical help and support through our
Network and Area Family Contacts, and to provide various educational and
recreational opportunities for the children with JIA and their families. We aim to
achieve this in a variety of ways: |
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Regular
newsletter, including information about the charity, various events and
many aspects about JIA, e.g. suggested treatments, information about drugs, etc. |
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Active support network. This is led by parents for parents in whatever way they
wish. In some areas it is telephone contact, some areas meet regularly and some
areas arrange trips for the children and fund-raising events. |
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Yearly family weekend to provide information, advice and support to the whole family, as well as a great deal of fun. |
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Increase general awareness
of JIA, e.g. fund-raising events, promotional items and various
conferences. |
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Outings for the children with
JIA. |
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Many new projects developing concerning educational and social support. |
The executive committee has a representation of parents and professionals, and due to this we feel there is a two-way sharing of
knowledge and ideas which is of benefit to everyone. The charity is run purely on a
voluntary basis, and our membership is open to
anyone, and except for small administration costs all money goes into our various projects.
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The Lady Hoare Trust helps children with arthritis or severe limb disabilities
by providing them and their families with practical and financial support.
The Trust, founded in 1962 to help children disabled by the drug thalidomide,
now encompasses all children under the age of 18 who have joint and limb
disabilities. It provides practical help to these children and their families via a
network of specially trained fieldworkers as well as financial help in the form of
small grants.
The Trust also offers advice and information to meet the very diverse needs of
families with children affected by arthritis and severe limb disabilities, and works to raise public awareness of the needs of children
who live with these conditions.
Our experience has shown the importance of helping the whole family cope with the extra practical and emotional demands of
having a child with a physical disability. Parents may need help with practical issues such as treatment, benefits or education and
extra support may be needed through times of stress.
Fieldworkers, usually qualified social workers, use their skills and experience to help children and their families cope, responding
quickly to requests for help and visiting families at home. They provide assistance in whatever form is appropriate to the individual
family. They can often become the family’s first contact point when they need help and can provide continuity so that over time
they become someone the family knows well and can depend upon.
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 Useful
Addresses
Action for Sick Children
Argyle House, 29-31 Euston Road
London NW1 2SD
Tel: 020 7833 2041
Advisory Centre for Education (ACE)
18 Aberdeen Studios
22 Highbury Grove, London N5 2EA
Tel: 020 7354 8318
Arthritis and Rheumatism
Council (ARC)
Copeman House, St Mary’s Gate
Chesterfield, Derbyshire, S41 lTD
Tel: 01246 558033
Banstead Mobility Centre
Damson Way, Fountain Drive
Carshalton, Surrey, 5M5 4NR
Tel: 020 8770 1151
Benefits Agency
Benefit Enquiry Line for people with a
disability 0800 882200.
Available 8.3Oam-6.3Opm Mon-Fri
and 9am-1pm Sat
Tel: 0800 441144 for the Benefit Agency’s
forms completion service
Centre for Studies on Integration in
Education (CSIE)
4th Floor, 415 Edgware Road
London NW2 6NB
Tel: 020 8452 8642
Contact-a-Family
170 Tottenham Court Road
London W1P 0HA
Tel: 020 7383 3555
DfEE Publications Centre
P0 Box 2193, London E15 AEU
For copies of: The Code of Practice,
Dept. of Education Circulars:
Pupils with Problems: Guide to SEN
Tribunals; The Parent’s Charter and a list
of other useful DFE publications.
Tel: 020 8533 2000
Disability Alliance
Universal House,
88-94 Wentworth Street
London E1 7SA
Rights Advice Line: 020 7247 8763.
Offers advice on social security
benefits — answerphone will give details
of times available.
Disablement Income Group (DIG)
Unit 5, Archway Business Centre
19-23 Wedmore Street
London N19 4RZ
Disabled Living Centres Council
1st Floor, Winchester House
11 Cranmer Road, London SW9 6EJ
Tel: 020 7820 0567
for details of your nearest DLC.
Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Tel: 020 72896111
Employers Forum on Disability
Nutmeg House, 60 Gainsford St
London SE1 2NY
Tel: 020 7403 3020
Publishes practical guides to assist employers to train, recruit
and develop the skills of disabled
employees.
The Stationery Office
Publications Centre (HMSO)
P0 Box 276, London SW8 5DT
Tel: 020 7873 9090
Independent Panel for Special
Educational Advice (IPSEA)
22 Warren Hill Road, Woodbridge
Suffolk, IP12 4DU
Tel: 01394 382814
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Medic Alert Foundation
12 Bridge Wharf,
156 Caledonian Road
London N19 9UU
Tel: 020 7833 3034
Motability
Goodman House, Station Approach
Harlow, Essex, CM2O 2ET
Tel: 01279 635666
National Association for the Education of
Sick Children (NAESC)
Open School,
18 Victoria Park Square
London E2 9PF
Tel: 020 8980 6263
National Association of Special
Educational Needs (NASEN)
York House, Exhall Grange,
Whellwright Lane, Coventry,
Warks, CV7 9HP
Tel: 01203 362414
National Centre for Independent Living
250 Kennington Lane
London SE11 5RD
Tel: 020 7587 1663
National Federation of
Housing Associations
175 Gray’s Inn Road
London WC1X 9UP
Tel: 020 7278 6571
Network 81
1-7 Woodfield Terrace,
Chapel Hill
Stansted,
Essex, CM24 8AJ
Tel: 01279 647415
PLANET, Save the Children
Cambridge House,
Cambridge Grove
London W6 0LE
REMAP
National Organiser:- Mr J Wright
Hazeldene, lghtham
Kent, TN15 9AD
Tel: 01732 883818
Royal Association for Disability and
Rehabilitation (RADAR)
produce a guide ‘INTO WORK’.
This provides valuable information for
disabled people seeking work.
Price: £2.50 including postage and
packing. Available from:
RADAR
12 City Forum, 250 City Road
London EC1V 8AF
Tel: 020 7250 3222
SKILL — National Bureau for Students
with Disabilities
336 Brixton Road
London SW9 7AA
Tel: 020 7978 9890
Special Education Consortium and
Council for Disabled Children
c/c National Children’s Bureau
8 Wakley Street
London EC1V 70E
Tel: 020 7278 9441
Spinal Injuries Association
Newpoint House, 76 St James’s Lane
London N1O 3DF
Tel: 020 8444 2121
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Northern Ireland
CCAA and YAC see JOINTZ
JOINTZ (Parents Support Group)
Briege Gault, 21 Upton Park
Belfast, County Antrim, BT1O 0LZ
Tel: 01232 622050
LHT Fieldworker
Rita Douglas, 31 New Forge Lane
Belfast, BT9 5NW
Tel: 01232 669882
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How to find your local Organisation of Disabled People:- |
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In England ask:
British Council of Disabled
People (BCODP)
Litchurch Plaza, Litchurch Lane
Derby, DE24 8AA
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In Wales ask:
Disability Wales
‘Llys Ifor’, Crescent Road
Caerphilly CF83 1XL
Tel: 01222 887325
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In Scotland ask:
Disability Scotland
Princes House, 5 Shandwick Place
Edinburgh, EH2 4RG
Tel: 0131 229 8632
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In Northern Ireland ask:
Disability Action
2 Annadale Avenue
Belfast, BT7 3JH
Tel: 01232 491011
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