Real life stories by parents and children living with JIA

My Lily

Written by: Lily's Mother

"Lily is 8yrs of age, and to look at her you would think she is a normal healthy child. However, Lily has Juvenile Arthritis and started with it when she was just 16 months of age." Read more...

Family life adapts when you discover your child has JIA.

Written by: Caroline & Tony Cox (Children's Chronic Arthritis Association (CCAA)

"When our daughter was finally diagnosed as having JIA we were initially relieved as many months had been spent visiting doctors, consultants and hospitals. Soon our feelings changed when we realised that this disease was not something that could simply be treated and cured." Read more... 


Arthritis isn't you, it's just a part of you. As long as you keep smiling it hasn't beat you.

Written by : Charlotte Stacey

"The three words at diagnosis flipped my world upside down.  “You have Arthritis” isn’t something I was expecting to hear at the age of 16. But at least I knew why I’d been in so much pain for so long and so fatigued all the time and it explained the swelling at my joints. Not once did it cross my mind that I had a serious illness though." Read more...

Our Story

Written by: Sarah-Louise & Amber Frost

"It first became apparent there was a problem when my daughter Amber began to crawl at 6 months.  l began to notice that she seemed to favour one of her legs, and then when she tried to walk we would notice that one of her legs was dragging, this went on intermittently for a few months until after weeks of worry l took her to hospital when her knee swelled up one night."  Read more...

 

 

The CCAA are always looking for real life stories to add to the ones we already have. 

These stories truely help people to relate to and understand the difficulties of living with JIA, but most of all make people realise they are not alone.

If you would like to share your story with us please email us at info@ccaa.org.uk and we would be delighted to feature you on the website.

The CCAA is a registered charity (No. 1004200) run by parents and professionals

Headquarters
General Secretary: Caroline L Cox, Ground Floor, Amber Gate City Wall Road, Worcester WR1 2AH
Tel: +44 (0)1905 745 595 | Fax: +44 (0)1905 745 703 | Email: info@ccaa.org.uk

Patron: Prof. P Woo PHD. FRCP. FRCPCH
Patron: Prof. T Southwood BM. BS. FRCAP. FRDP. FRECPCH.
Patron: Dr N Hasson MB, ChB, FRCPCH.