The CCAA (Children’s Chronic Arthritis Association) is a leading support charity in England and Wales, for families with children suffering from Juvenile Idiopathic Arthritis (JIA). CCAA is run by people who have been affected by the disease and are passionate about supporting others and providing a support network for children with Arthritis and their families.
Share your childs journey with us to help inspire others. It may be a sport they love, an achievement, an aspiration or a story about how they are trying to overcome JIA. It’s your stories that really help to inspire and encourage others. They help to raise awareness of JIA and what children can achieve despite the daily struggles they face.
Jazmin’s passion for Geography has stuck with her since being hospitalised for months in Great Ormond Street Hospital when she was very young. She took it at GCSE level, A Level, Undergraduate level, Master level and is now studying PhD level!
Becoming a Volcanologist is not just fulfilling a life dream for Jazmin, but she says, ‘a statement to the JIA community that no matter what you want to be in life, it can be done despite the condition.’ Jazmin, and many other children striving to be the best they can be, are all living proof that JIA is just part of you, and despite it, you can achieve what you want to in life.
“We have just returned from our first weekend in Hollowford. The passion, enthusiasm and sheer dedication of the whole team is phenomenal. Although my daughter struggled, she has reflected and said that she is glad she met other children that knew exactly what she’s going through. The chance to meet other parents meant so much to me. I can not recommend these weekends enough.”
“The weekend was very special for our little daughter to connect with other children with JIA and to realise that she is not alone and there are many other superstars. It was wonderful to meet other families going through the same journey.”
“This was our second weekend with CCAA and was just as fantastic as the first, we found as our daughter has grown the information provided has been invaluable and as she is a lot older this time, had loved making friends “like her” and was able to partake in The activities and try new things she would never have Previously attempted, her confidence grew in such a small amount of time and she did not want to come home. We also feel the support CCAA provide is second to none, and it makes do much difference to not only meet other parents who know what it’s like but also all of the organizers do too. Thank you so much for selflessly organizing this event it is just incredible.”
“What a brilliant weekend! Us and the children have thoroughly enjoyed ourselves. Meeting all the fantastic, dedicated and knowledgeable volunteers and health professionals has been so helpful. We have left with more confidence to better support our daughter through her condition, and the kids have made fantastic friends with children like themselves. Massive thank you to all those who give up their time to make these weekends happen.”
“This charity lets kids with arthritis be kids. The weekends are amazing. Kids get to be with other like minded kids. Siblings too. The get to do things they perhaps didn’t think they could ever do- rafting, caving, archery to name but a few. Parents get the time to hear from and (importantly), interact with the medical professionals we only get to spend 10 minutes with at our appointments. We have learnt more in one weekend than in 2 years post diagnosis. If you’ve never been on a weekend then you need to!”
“It was great to meet so many families in the same position as us, to share stories, experiences, tips etc. Our daughter is 6 years and opened up about her condition, made lots of new friends and she is full of confidence about taking part in activities. Thank you to the CCAA team for giving up your time to put on this great weekend. Thank you also to the health care professionals for attending to present to the parents . I would highly recommend any family with a child with JIA attend.”
“CCAA helped my family come to terms with this disease, providing information, resources and well needed support when I was in a state of confusion. I now enjoy reading the testimonies of others and the sharing of info.”
“Alex loved it. He’s come away so happy and with so much more understanding of his JIA and he knows he’s not alone now.”
“I totally recommend this weekend anyone who hasn’t been, it helps answers a lot of questions and we feel have the knowledge now to improve our daughters future. thank you, thank you, thank you!”