CCAA Committee
CCAA is powered by a dedicated team of volunteers who generously give their time to support children and families affected by JIA. Our volunteers include parents, healthcare professionals, siblings, and young adults living with JIA, all united by their personal connection to the condition and their passion for helping others.
They are at the heart of everything we do. For more than 30 years, their commitment, compassion, and hard work have enabled CCAA to continue providing support, friendship, and opportunities for families across the UK.
Over the years, volunteers have come and gone, some have returned, and others have remained with us throughout our journey. Every single person who has been part of our committee, support network, or volunteer team has helped shape CCAA into the charity it is today.
To all our past and present volunteers, thank you. Your dedication has made a lasting difference to countless children and families living with JIA.
Carl Wescott
Carl became the CCAA Chairperson in July 2017. Before this he was Vice chairperson for some time. Carl’s daughter was diagnosed with JIA at the age of four.
Sue Wescott
Sue is the CCAA secretary. She has experience in early years teaching and supports many of our families who have questions surrounding education. Her daughter was diagnosed with JIA at the age of four
Glenda Dalton
Glenda is our Vice Chair and a Physiotherapist. She is also a member of the BSPAR parents’ forum. Her daughter was diagnosed with Juvenile Idiopathic Arthritis as a teenager.
Daniel Madge
As a JIA parent, Daniel knows the daily struggles of this disease. His family attended one of our weekends. After such a successful weekend for his family, he applied to become a CCAA committee member.
Mira Marcetic
Mira’s daughter was diagnosed with JIA. She is Treasurer for CCAA, and has been heavily involved in the developments and growth of CCAA for many years.
Richard Piper
Richard’s daughter has Juvenile Idiopathic Arthritis. He brings a wealth of charity leadership experience with him to CCAA as previous Director of the Roald Dahl’s Marvelous Children’s Charity.
Rhiannon Godden
Rhiannon’s daughter was diagnosed with JIA at 3 years old. She joined the CCAA as a parent rep in 2023 and joined the committee in 2024. Rhiannon is passionate about supporting the local groups and parent reps.
Matilda Piper
Amy Wescott
I was diagnosed with JIA when I was four years old and have over 30 years of living with the condition. I have been involved with CCAA for a number of years, volunteering, being a local area rep and currently on the committee. I have never let JIA stop me and have spent a few years living and working in Australia and New Zealand. I now work as a Children’s Occupational therapist.
Other Support
CCAA Volunteers
Alongside the invaluable work of our committee, we are fortunate to have the support of a fantastic team of volunteers and administrative helpers who play an important role in running the charity.
Their dedication and support help us deliver our services, organise activities, and make our family events possible throughout the year. We are incredibly grateful for the time, skills, and enthusiasm they bring to CCAA.
Emily
Monique & Amy
Alice
Caroline
Natasha
Rita
Charlie
